ACT UP is a discourse. Between street actions, press releases and policy
advocacy, it has kept moving and moving through those years as we pushed to get
drugs into bodies of people around the world.
For
ten years now, we’ve been talking about ending AIDS, once and for all.
But something feels different in 2015. For the first time, the state seems to be
acknowledging the possibility. Many have started to feel like we could actually be making real progress toward that goal. Yet, the task at hand needs resources.
As ACT UP’s Jim Eigo wrote on facebook today:
Ending the Epidemic Comes to City Hall June 18, 2015, 11 AM!
We are asking the city--ground zero of the HIV epidemic--to make a modest 10
million-dollar down payment for HIV testing, prevention, treatment, care,
supportive services and the data collection that lets us know what is
happening. Without this commitment from the city, Ending the Epidemic in New
York State is not gonna happen. PLEASE BE WITH US!
On April 29th, Governor Cuomo delivered a
blueprint for ending AIDS in New York state, based on the recommendations of a task force of AIDS activists, including Charles King, of Housing Works, and Jim Eigo of ACT
UP. The governor backed the proposal with funding. Now it is time for the city to match these efforts.
On June 18th, New York AIDS activists converged at
City Hall to ask our mayor to support the proposal, with funding.
“Its getting old being here,” I noted to my friends Tim from
ACT UP and Bobby from VOCAL. “I hope the politicos can match their rhetoric
with some action.”
Bobby Tolbert |
Bobby Tolbert, a board member of VOCAL, explained why we were
here. “I think it behoove the city to
match the governor’s $10,000,000.00. Its
still a drop in the bucket but we can get a start with that.
Tim and Jim of ACT UP. |
I stood on the steps of city hall with Tim and Jim from ACT
UP as the press conference started.
Jaron Benjamin
introduced everyone. “Why are we here? To end AIDS now! It can’t happen without action,” he explained,
leading the crowd in a call and response. “Why are we here? To end AIDS now!”“80%
of the epidemic is in New York city,” he continued. “We know how to end aids, so we have to end
AIDS now.”
“Ideas are great, but we need action,” noted Lynda Mallow, of Iris
House.
“Its always a great day when people get together to fight AIDS,” Benjamin continued, with a
smile.
Jaron Benjamin |
Seemingly channeling Vito Russo, whose why we fight speech set the course for AIDS activism, Jim Eigo stood up to speak
about where the movement has been and where it needs to go, so we end this epidemic once and for all.
Jim Eigo |
The first
time I stood on these steps was in December, 1987, when community groups were
not permitted to rally on the grounds of City Hall. But a brave member of City
Council, the late, legendary Miriam Friedlander, concerned that so many New
Yorkers were dying of this baffling disease AIDS, concerned that too many of
them were poor, or non-white, or “fags”, or “addicted” for official New York to
give a damn, used her privelege as a councilwoman, and went down to the East
Gate, and one-by-one smuggled about 80 members of the fledgling AIDS activist
group ACT UP past the lone cop who once guarded these grounds. We were now
Miriam’s special guests, and with her, in flagrant violation of the rules, we
proceeded to stage a glorious, raucous late fall rally at sunset to tell
official New York: the people dying of AIDS are New Yorkers too, and every bit
as deserving of a good life as you are.
At that
time New York City spent almost nothing on AIDS. That is not the case today,
27-&-a-half years later. But all that time later, AIDS is still with us.
New York City is still ground zero of the HIV epidemic in the US. Fewer than
half of New Yorkers living with HIV receive sustained adequate treatment. And
most newly infected New Yorkers still come from a group that official New York
thinks too little about: the poor, the unconnected, the homeless, the
immigrant, the woman whose history puts her at risk, and the queer, especially
young queers, especially young queers of color from across the full spectrum of
gender expression.
Today one
thing is different. More than 60 community groups have banded together to draft
a detailed blueprint for Ending the AIDS Epidemic in New York State by 2020. So
why are we on the steps of the seat of New York City government? 80% of the state epidemic is here in the city, and
until the city pays its share, the End of AIDS is not gonna happen. For this
first year the community is asking the city for a modest 10 million dollars for
HIV testing, prevention, treatment, care, supportive services and collecting
the data that tell us what is happening. In NYC this is not a lot of money. In
the 7th straight year of a rising stock market there’s a lot of cash
sloshing around. 10 million dollars is paltry when you consider that every
fresh HIV infection will cost New Yorkers half a million dollars. 10 million
dollars is nothing next to the personal, human cost to an individual New Yorker
of every fresh or untreated infection.
So all
these years later we are still in search of the brave city council member—in
fact we are in search of many of you—to come forth and stand with us and say
that every New Yorker really does matter and we are willing to pay the little
it will take to at last in NYC make ground zero stand for zero new HIV
infections and zero AIDS deaths, and once and for all end the deadliest
epidemic of our time. ACT UP, FIGHT BACK, END AIDS!
The crowd roared in
approval, following Eigo’s speech.
“Its always hard to speak
after Jim,” noted Corey Johnson. He
described the task force lead by Charles King, of Housing Works, that the
Governor endorsed. “Now its time for the
city to step up. $10,000,000.00 is a
nice first step. But the city has to
match it. We are at the tipping point
here. We are at the precipice. There are billions of dollars flowing through
the city. Our budget is a document of
our priorities. We are not asking for a
lot. We have a week to get that included. We have to keep on fighting. I am 33 years old and HIV positive, have been
for eleven years. I am around because so many waged this war before me. We need to see the day when there are no new
infections. The science is there. The data is there. Is the government there?”
Corey Johnson |
Johnson gave a great
speech, but the question is, can he get the funding to back it?
Kimberly Smith, of
Harlem United, stood up to talk about the structural barriers to keep people
from accessing housing, imploring the city to use the best of what we know to
end this epidemic.
Kimberly Smith |
Bobby Tolbert, of VOCAL, followed. “We
knew from the start that this was going to be a long fight. He talked about the
five year fight to get the 30% rent cap passed.
“But some people were still left out,” he continued. “That’s why we are here today. The time is now. We can end AIDS.”
Sadly, today people are still getting sick. And the city seems somewhat asleep at the wheel. Still most everyone seemed
optimistic that the city can get this done.
Bobby Tolbert |
As the press conference
ended, I talked with Cameron and Lavern about how many times we have all been
here before over the years.
Cameron and Lavern, who are always there. |
Bobby Tolbert and I talked about his days a decade ago speaking as a part of the bill of rights defense committee after a police round up when the campaign to end aids was just beginning.
We’ve all been here before. But between housing, testing, and access to treatment, prevention, treatment, care, supportive services and the data collection we can End AIDS Now.
ACT UP, Fight Back, End AIDS! the crowd cheered as the press conference concluded.
END
AIDS NY 2020 COALITION DEMANDS $10 MILLION FOR ENDING THE EPIDEMIC
City
Hall, New York, NY—Representatives
from the End AIDS NY 2020 Coalition, made up of 60 AIDS advocacy, service, and
research organizations from around New York State will gather on the steps of
City Hall on Thursday morning (6/18) to demand that Mayor de Blasio match New
York State’s contribution of $10 million dollars towards the Ending the
Epidemic Initiative, set forth by Governor Andrew Cuomo in April.
Cuomo
released the New York Blueprint for Ending the AIDS Epidemic (ETE) on April 29th,
after a Task Force of 63 experts and community leaders, including
representatives of key City agencies created the plan and delivered it to him
three months prior. The plan is comprised of 30 Blueprint recommendations that,
if fully implemented, will decrease new HIV infections in New York State from
approximately 3,000 per year to below 750 by the year 2020. In addition, the
Blueprint contains seven Getting to Zero (GTZ) recommendations that, if
implemented, will further reduce the number of new HIV infections to zero by
the year 2020.
While
the Governor’s leadership has been crucial to establishing the NY Plan to End
AIDS, support from Mayor de Blasio and the New York City Council is vital to
the success of the plan, as 80% of all New Yorkers with HIV reside in New York
City, and the majority of those are low-income people of color.
“The
commitment of $10 million from New York City is essential for effective
implementation of the Ending the Epidemic Blueprint,” said Sharen Duke,
Executive Director of the AIDS Service Center NYC and member of the Governor’s
Ending the Epidemic Task Force. “We are counting on Mayor de Blasio and the New
York City Council to make this crucial investment in our city, where
communities of color are shouldering a disproportionate burden of the HIV
epidemic.”
Advocates
and providers are demanding that $10 million be made available for initiatives
including enhancing and streamlining linkages to HIV prevention and care at NYC
STD clinics, improving access pre-exposure prophylaxis (PrEP) and post-exposure
prophylaxis (nPEP), extending affordable housing, and expanding
vocational training opportunities for people living with HIV/AIDS.
“We
are ready to deploy the best of what we know is effective and to scale up new
interventions,” said Charles King, CEO for Housing Works and Community Co-Chair
of the Task Force. “But that can’t happen without resources.”
“Women
of color, including transgender women and young men of color, are continuing to
see the highest rates of new infections in our communities. Commitment from
Mayor de Blasio to #EndAIDSNY2020
match the
State’s investment would ensure that these communities receive the required
resources and interventions necessary to reverse this alarming trend,” said
Ingrid Floyd, Executive Director of Iris House and Task Force member.
“New Yorkers living with HIV need support to remain on
treatment and for us to reach the end of AIDS. We need to make sure that we
continue to provide access to harm reduction services and housing, and we need
to make sure that everyone, no matter what part of the City they are from or
what drugs they use have full access to HIV treatment and prevention, including
PrEP,” said Jennifer Flynn, Executive Director of VOCAL-NY and Task Force
member.
New York City Council
Members are in budget negotiations this week and next. The City charter
mandates that budget agreement is reached by the end of June, which will mark
the one-year anniversary of Governor Cuomo’s historic announcement.
Great Recap and Thank you for Recaping Jim's speech.
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