ACT UP in all its glory - photo ACT UP |
There are few more powerful symbols of this than the
ACT UP die-in, designed to bring the casualties of the AIDS war home with
images of bodies in streets and corridors of power. It is ACT UP’s most telling of performances. As long as there is an AIDS epidemic, there
will be an ACT UP, even as the group ebbs with the currents of the epidemic. People,
come and go; participants die; communities are decimated and ACT UP meetings continue. Despite this people have been writing
premature autopsies for ACT UP for as long as I have been involved with the
group, two decades now. Yet, in between the
ebb and flow of countless movements, from Global Justice to Occupy, ACT UP has
remained, raging forward to fight this cruel epidemic.
ACT UP die ins around the world. Countless groups and movements have borrowed this theatrical gesture, including activists in Paris, at the Occupy One year anniversary photo by Elizabeth Brossa, Reclaim the Streets at the IMF World Bank photo by Caroline Shepard. ACT UP Paris Photo by Directphoto middle. |
Organizations and social movements are not
co-determinants. Affinity groups come
and go, as movements churn forward,
their members drop out and others join in.
Issues change and people adopt to a social environment in constant
flux. If one conceptualizes movements
as interest groups, then a chronicle of the organizational rise and decline
feels appropriate. The problem with this
analysis is that it is not always accurate.
Social movements are far more complicated than this. A richer way to approach movement scholarship
is to consider the work of individuals and cohorts across time. If one thing has been consistent, it has been
people ready to fight the carnage.
Groups have come and gone; affinity groups have risen with trends; some
have declined and others reborn. People
constantly drop out of AIDS activism.
And there are number of reasons for this. The life course of most direct action groups
is two or three years; yet others tend to arrive to continue the work. And in the unique case of ACT UP, they
continue for decades.
Simultaneous with this activism has been the almost
two decade long discussion of the decline of ACT UP. I remember sitting in the gym in 1993 reading
and article in Out Magazine entitled,
“Whats going down with ACT UP?” in which the author challenged the premature
autopsies (see Chew, 1993). People talk
all the time about what happened with AIDS activism, Cleve Jones explained to
me in 1995. Yet the single most
significant thing which happened was that people died, he explained (Shepard,
1997). And many grieved during this period. Some walked away to take a needed respite
from thanatos. I recall standing in
front of the AIDS quilt in 1996 in Washington DC, with tears in my eyes, and
making up my mind not to cry about AIDS anymore, no matter what. And that kept
me going for the next eight decade, as good friends died; my clients overdosed,
were shot, one was thrown out of a window of a single room occupancy
hotel. Yet, they continued to cope and
contend with the complications of living with HIV, hepatitis C, and any number
of other compounding factors. Others
watched their groups disband and despaired.
“ACT UP/Chicago was disintegrating right in front of our eyes,” Debrah
Gould recalls from 1995. “I sensed this
was it for ACT UP / Chicago,” (p. 268).
Gould is right, a chapter in the two decade history of ACT UP ended that
day. But was this it for ACT UP Chicago
or the AIDS direct action movement? It
is not easy to say. Certainly, the
historic record suggests otherwise (Sawyer, 2002). ACT UP New York held a meeting tonight, some
fifteen years later.
The theory that AIDS activism died with the decline
of the early cohorts of ACT UP has been
around since the early 1990’s when the first generation of ACT Uppers stepped
aside or died trying to stop this thing.
Still, in the years since ACT UP’s peak, affinity groups organized to
fight AIDS through direct action have come, gone and been reborn. And to be
fair, Gould acknowledges that certain chapters of ACT UP continue. Yet, she does not appear to hold their
efforts in high regard. Still, the
movement has continued. Here in New
York, affinity groups around AIDS / queer politics, including SexPanic!, Fed Up
Queers, Gay Shame, Queer Fist, and even the Radical Homosexual Agenda have
taken on simultaneous struggles against homogenization and the ongoing AIDS
onslaught. AIDS activism has overlapped with
struggles around public health among communities of color dating back to the
Young Lords and extending through ACT UP’s majority Action and Syringe
Exchange Committees into direct action
organizations, including CitiWide Harm Reduction, New York City AIDS Housing
Network, and Housing Works. Each still
make use of direct action to get the goods today. Others, such as Eric Sawyer (2002), one of
ACT UP’s founders helped push ACT UP an international direction, helping found
Healthgap, which has successfully pushed drugs into bodies of people across the
globe (D’Adesky 2006). Militant AIDS activism was not born with ACT
UP; groups such the Names Project and Lavender Hill Mob owe as much to gay
liberation as they do to the queer direct action which followed, as AIDS
activism dovetailed with the global justice movement (Smith and Siplon,
2006). And most certainly, militant
movements would continue around AIDS activism …
ACT UP and Occupy banner at Washington DC International AIDS Conference 2012. Photo by Peewee Nyob |
With
all this in mind I attended the ACT UP planned die in at the NY Public library
on Friday. As the Facebook invite noted:
ACT UP/New York will mark the historic New York
Public Library exhibition on AIDS activism with a “die-in” on the first day of
the "Why We Fight: Remembering AIDS Activism" exhibit, Friday,
October 4th, at 5pm.
Please join ACT UP and allies from near and far to make the link to present-day
HIV-related issues that desperately need media attention. Please contact ACT UP
and help us say: AIDS is Not History!
When: Friday, October 4 at 5pm sharp
Where: Stephen A. Schwarzman Building, Fifth Avenue at 42nd Street
Meeting Place: Entrance to the exhibit
Who: ACT UP and allies
On the ACT UP list serve, Mark Milano pointed out
how important it was for all of us to take part.
I want to emphasize how important this die-in is. It's
been publicly announced as a way to make it clear that AIDS, and ACT UP, are
not history.
But if we have only a handful of people, it will reaffirm the long-stated lie that ACT UP is dead.
PLEASE come, and spread the word - we need at least 30 bodies on that floor to make an impression!
This is a no-risk action that will send a powerful message if it succeeds - and an equally powerful one if if fails.
Are you with us?
Mark Milano
But if we have only a handful of people, it will reaffirm the long-stated lie that ACT UP is dead.
PLEASE come, and spread the word - we need at least 30 bodies on that floor to make an impression!
This is a no-risk action that will send a powerful message if it succeeds - and an equally powerful one if if fails.
Are you with us?
Mark Milano
Over the last fifteen years, Milano has been one of
the most effective activists in New York, responsible for zapping Aetna health
insurance company when they denied him access to medications, leading a die-in during the beginning of the war in Iraq, zapping delegates at the RNC in 2004,
and taking a lead in the international AIDS drug access campaigns of the early
2000’s. Living with all of this, he’s still at AIDS
activism because his life depends on it.
So do many of our lives and communities. ACT UP stalwarts Jim, Nanette, and Andy Velez
chimed in that they would come, as would Reginald, Ed and countless new
activists.
Riding my bike to the zap, a felt a sense of
profound energy riding up Madison up to 42nd for the action.
AIDS activism does not belong in the dustbins of
history, with a coda to history.
And it certainly did not feel that way when I saw rows of
police cars by the public library when I arrived at quarter of five. One was picking his nose. Bacillo Mendez II was outside negotiating with
white shirts.
But it does have a profound history, as Andy Velez
explained standing around the show before the action.
He first became AIDS activism had a place in the
larger history of social movements during an election night rally in 1992. There he realized how many people from middle
America were ready to leave the sidelines and support ACT UP against Bush.
ACT UP has rightful place in the history of the
left, as a place for a defiant, devastating, and delicious brand of high
octane, often angry, ludic activism, which still continues. Yet, so do
the deaths and infection rates.
The exhibit highlights much of this history, including rarely applauded working groups such as the syringe exchange.
Institutionalizing activism has way of taming it. It
put a period mark on the Civil Rights movement, years too soon. That is why ACT UP was at the museum, to
remind everyone that the imperative of AIDS activism remains. The AIDS crisis continues. ACT UP is still
here.
Top photos by Benjamin Shepard bottom Jim Eigo explaining his re engagement with ACT UP and the imperative of AIDS activism, bottom Michael Tikili and this author. Photo by Reginald Brown |
So, we
marched out of the exhibit, chanting ACT UP Fight Back, Fight AIDS! And fell to the ground, silent remembering the
dead and the activism we have ahead of us.
Die-in photos by ACT UP |
As my friend Eddie Fukui writes:
AIDS is NOT history.
“While it is important and necessary
to remember those that have come before us, the fight to #EndAIDS is by no means
over. ACT UP, FIGHT BACK, FIGHT AIDS!”
My buddy Peter Shapiro came along and took this picture after the die-in. It feels so good to be with ACT UP again. |
Activism engages us in a dialogue
with people, an engagement with powers and principalities, a conversation with history. It is an opportunity to contemplate what is real and important and meaningful in this world. It is a story stretching through decades of cohorts of activists. And this story is by no means over.
Post script
To continue some of this conversation join me Tuesday at Museum
of Reclaimed Urban Space for:
On the East Village,
Street Activism, and the Gentrification of the Mind.
A discussion ofSarah Schulman’s life, writing, and the history of East Village activism, art,and the gentrification of the imagination between Sarah Schulman and BenjaminShepard.
Does social change come from institutions or from grass roots movements? And what of the legacies of AIDS, housing, and gardens activism in New York’s East Village? Did the city create these changes or did activists? And what is the legacy of these struggles? Will the efforts of regular people be lost to the gentrification of the imagination or can regular New Yorkers create their own history and institutions?
Join Sarah Schulman in a conversation with Benjamin Shepard about the gentrification of the mind.
Sarah Schulman is the author of 16 books, most recently The Gentrification of the Mind: Witness to a Lost Imagination (U of California Press) and Israel/Palestine and the Queer International (Duke University Press), she is co-producer with Jim Hubbard of the documentary feature film UNITED IN ANGER: A History of ACT UP, which they will be screening in Moscow at the end of October. Sarah is Distinguished Professor of the Humanities at the City University of New York, College of Staten Island and on the advisory board of Jewish Voice for Peace.
A discussion ofSarah Schulman’s life, writing, and the history of East Village activism, art,and the gentrification of the imagination between Sarah Schulman and BenjaminShepard.
Does social change come from institutions or from grass roots movements? And what of the legacies of AIDS, housing, and gardens activism in New York’s East Village? Did the city create these changes or did activists? And what is the legacy of these struggles? Will the efforts of regular people be lost to the gentrification of the imagination or can regular New Yorkers create their own history and institutions?
Join Sarah Schulman in a conversation with Benjamin Shepard about the gentrification of the mind.
Sarah Schulman is the author of 16 books, most recently The Gentrification of the Mind: Witness to a Lost Imagination (U of California Press) and Israel/Palestine and the Queer International (Duke University Press), she is co-producer with Jim Hubbard of the documentary feature film UNITED IN ANGER: A History of ACT UP, which they will be screening in Moscow at the end of October. Sarah is Distinguished Professor of the Humanities at the City University of New York, College of Staten Island and on the advisory board of Jewish Voice for Peace.
155 Avenue C, New York, New
York 10009
Roaring through the halls of the New York Public Library with my fellow ACTors UP: acoustic sublime. What beautiful music we make together.
ReplyDeleteBrilliant. Sadly, Gould is still right: there is no AIDS activism in Chicago, so I have to keep yelling.
ReplyDeleteYou know, I am a member of Act Up Paris. I have been photographing their actions as a free lance photographer for some 20 years. I don't mind that you reproduce an image here, but would appreciate it if you give me credit and a link back to the website. http://www.demotix.com/news/1183325/act-paris-protests-against-national-front-paris#media-1183232
ReplyDeletewill do... thanks directphoto!
ReplyDelete